Only recently have I understood the importance of controlling re-activation of the Epstein Barr Virus, a Herpes virus which causes Mononucleosis, one of 4 typical factors in the development of MS according to the Neurologist researcher Dr Robert Zivadinov.
Yes , I fell ill with Mono at age 9. My first known MS attack occured 22 years later during a period of extreme stress – ballet performance stress doubtless exacerbated by a viral « cold ». I succeeded in halting the « attack » with a Shiatsu massage. I didn’t know why the massage put an end to the crisis until 30 years later when I learned about Dr Zamboni’s CCSVI work. Yes, tense muscles must have closed off the chest Azygous vein to trigger a blood back-jet onto the spine. A renowned British neurologist Dr. Pallis who examined me before a master class at the Hospital surmised that only half of the spinal cord had been damaged since the leg wasn’t paralysed like the arm. This was unusual.
It took maybe 2 months to really recover nerve damage and strength, but the massage abruprtly halted the process. I think the fact I DID recover without medication or Dr’s assistance gave me confidence I could heal on my own initiative. Later when the Dr gave a name to the illness, Multiple Sclerosis, I didn’t collapse in horror « Oh, I have a dread disease ! » Rather I decided to re-organize my life so I could heal. And I did heal several years later.
Chinese Medicine therapy by a Chinese Acupuncturist Dr who had been formed in China by a « Master » kept me going over the next few years. Coupled with bitter herb teas, the acupuncture treatments kept the blood circulating. On at least one occasion incipient paralysis in my feet stopped after a 2 hour acupuncture treatment. But I still gradually went downhill. For one, I was running a French Perfume shop « Parfums de Provence » in San Francisco which meant I was working in a toxic environment. I realized I could never heal until I closed the business to focus on healing. So when the lease was up I freed myself of the « lovely » toxic fumes and set forth in search of solution.
Six months later a massage therapist referred me to Dr Jimmy Scott, a Kinesiologist who had developed an integrated healing protocol based on « muscle testing ». He called his work « Health Kinesiology » based on the TouchForHealth work of the Chiropractor Dr John Thie. The 14 Chinese meridians (12 organ plus Central and Governing) are associated with muscle groups. When the meridians are « unbalanced » the muscles are weak. Once balanced, the corresponding muscle strengthens. Dr Scott developed a method to balance all the meridians quickly and then used the arm to ask the body questions about diet, supplements, emotions, etc. Sounds quackish, but it worked. Within a year I had healed « permanent » nerve damage. MY EIGHT STEPS TO MULTIPLE SCLEROSIS HEALTH give an overview of his protocol – detoxification, diet change, supplements, energy work.
He didn’t discover the blood/CSF circulation CCSVI issue. Rather, he focused on balancing the CHI or meridan energy circulation. My monthly visits must have kept the blood circulating until I had one setback when the decision to leave my husband triggered a stress attack.
O.K. Why did I go downhill so dramatically between Dec 2019 and May 2020 ?
For one thing a sleeping pill caused me to fall asleep while standing which sent me crashing to the floor in October 2019. (No more sedatives for me !) I broke my already damaged right arm. It healed OK but my arm was really handicapped after that. Later the Osteopath told me that the bunched up shoulder/arm position was throwing the pelvis off. After my last visit December 2019 I could still walk with a simple cane once he had adjusted the pelvis to release the legs. But when we traveled to Marbella for a winter stay, the Spanish Osteopath didn’t do the chiropractic type work which would have adjusted the pelvis. I realize now that it was during the stay in Spain that one leg became shorter than the other. My back/body was « twisted ».
Then of course the Covid « confinement » closed the Osteopath’s office. By the time I saw him again late May 2020, the damage was done. The lady Taxi driver exclaimed, shocked, « What happened to you » as I stumbled uncharacteristically on her arm late May 2020.
At the same time the Physical Therapist noticed a marked loss of strength in my « good » left leg. What happened ?
Apparently the EBV had re-emerged. As the Stanford scientists reported in 2022 research, the immune response must have attacked the protein in the myelin sheath at the same time as the protein in the EBV. I can’t recall any crisis which would have triggered a blood « back jet ». However, the « twist » in the spine must have restricted blood/CSF circulation creating a hypoxia low oxygen condition to re-awaken the dormant EBV.
National Center for Biotechnology Information
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10958269
« EBNA1 (latency) seroreactivity increased in the pre-MS group, at 15–20 years before clinical MS onset…Conclusions Seroreactivity against latent and lytic EBV antigens, and in a subset ANO2, was detectable on average a decade before the appearance of a gradually increasing axonal injury occurring in the last decade before the onset of clinical MS. These findings strengthen the hypothesis of latent EBV involvement in the pathogenesis of MS. »
I fell ill with Mononucleosis in 1958. My first known « attack » occured 22 years later in 1980. I’m convinced the 1980 crisis was the consequence of a CCSVI type blood back jet. I might have avoided further deterioration had I faithfully followed my Seven Steps to MS Health launched in 1984. I think now that unless I can find someone to release the blood/CSF circulation, the MS will continue this severe (for me) Progression. Like any flu, the recent Covid infection cramped the muscles to restrict fluid circulations which weakened me further. If I was in California I would seek out a Rolfing therapist who might be able to release the muscles imprisoning my pelvis. (It would be a miracle if a nearby newly arrived Physical Therapist educated in Romania could do this work. My few visits suggest the possibility. We shall see once summer is over.)
In the meantime I will try to find a way to de-activate the EBV with medication. I will present the following list to my local MD and see if she has ideas. I just started taking Parthenolide (Feverfew) suggested by DIM, a TIMS https://www.thisisms.com participant, who does research on EBV to help his wife.
- Famcyclovir (Stanford University, Herpes 6)
- DIM Acyclovir (half infected B cells)
- Valcycyclovir (Valtrex)
- Sikonin
- Apigenin
- Parthenolide (Feverfew)
- Ivermectin
- Spironolactone https://medicalxpress.com/news/2020-…
- Dipyridamole
Tags : EBV Epstein Barr Virus, Mononucleosis, CCSVI MS, Ivermectin, Feverfew, Dr Jimmy Scott, Dr Pallis, Touch For Health
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