MS: After Diagnosis
Once the diagnosis has come down, it's a demyelating
disease, probably MS, step back and relax, at least you don't have a brain
tumour. And stress and anxiety will only make matters worse. Imagine the blood
backing up, flooding your brain and/or central nervous system. You have to stop
that reflux as soon as possible. That means RELAX. All the diagnosic tests in
themselves are stressful, so step back from all that and begin to inform yourself.
Marc Stecker of Wheelchair Kamikaze believes that the
immunosuppressive drugs developed over the last 20 years are the best treatment
now available since they appear to have slowed disease progression for
relapse/remit cases. However in his blog post of March 31, 2013 he admitted that
"none of the other MS drugs have helped me."
(Once you hit the Progressive stage, you might as well turn
to alternatives since nothing else is available.) Nonetheless reports of drug
efficacy are contradictory and reported side effects often serious, even fatal.
Drugs are not the only option available although it's likely the only one the
Neurologist will offer. Neurologists are treating an immune system reaction to a
blood reflux. They are treating a secondary problem. Consider treating the
original problem instead. But to do that you will have to take matters into your
own hands. I think it's crazy to launch into potentially toxic drugs without trying
alternative therapies.
I believe a major illness is a call to change.
Either one participates in the transformation, or one will be transformed
against one's will. I also believe true healing requires a healing partnership.
The best healer acts as a faclitator in one's own self transformation, not as a
director. The worst thing one can do is act like a passive object on whom an
omnipotent Doctor works his "magic". An alternative healer
(naturopath/nutritionist/kinesiologist???) who can help you think through the
various options can be an important complement to "official" medical contacts.
Now is the time to act.
Refer to the blog entry - MS Cure or Control: A Review
1) First, Stop the "attack" which is actually a blood reflux. I've found a neck
massage forcing the blood down towards the heart is enough to stop one for me.
An Acupuncture trreatment - the Gall Bladder Meridian and Bladder Meridian must
be treated (see Acupuncture blog entry) - has worked for me. Your problem may be
structural, so a Chiropractic or Osteopath's adjustment on the Atlas and upper
cervicals might release the brain fluids. The Neurologist might have a drug
which will stop the attack, though I wouldn't take something that you can't get
off of after the crisis is passed. (My own early experience of an MS attack
meant 6 weeks - 2 weeks of "attack" (the blood must be flooding the CNS), 2
weeks of "scarring" when the myelin dries up, and 2 weeks to recover most of
lost function, leaving some deficits.)
2) Once the crisis is passed, get busy on finding a practical solution. First off,
analyse what stress factor triggered off the attack. Was it emotional,
professional pressure, or some kind of poisoning such as too much aspartame? An
accident which injured the head-neck,back? Keep a journal and note whatever
issues trigger off a problem, play the detective in your own life. Then make the
necessary adjustments.
3) Consider the TOXICITY factor. Stop Aspartame and other food additives at once. (Don't bother with the
mercury dental amalgams, at least not at first. Having them removed can even
increase the toxicity if badly done, and there are many other factors to
consider first.) I include food intolerances in the TOXICITY category.
DIET: There are apparently 4 labs in Paris which take blood samples to test up to 250 items for
food intolerances (which as my Kinesiologist said, are not the same phenomena as allergies.) It is good to know
that holistic Doctors are ordering blood work to determine these intolerances since most people have more
confidence in an "objective" physical measure. I favour Kinesiology to determine the ideal
personalized diet, but a good therapist may be difficult if not impossible to
find and for some the method (muscle testing) may be too subjective. So
find a good naturopath/nutritionist/holistic Doctor. Until you can find help, assume you have a gluten and lactose (dairy) intolerance.
Check out the Paleo-Macro diet on this site. The Paleolithic Diet developed by Roger
MacDougall can be found on Wikipedia. Jimmylegs on the ThisIsMs.com site is
their on site diet expert who gives referrals to other resources.
DETOXIFICATION should be part of the therapy.
SUPPLEMENTS Besides the vitamins A, B Complex, C, D, E, include
Calcium Magnesium, Omega 3, Zinc, Evening Primrose Oil, Seek good advice and do
your own research.
INFECTION: Some believe that infections such
as Chlamydia Pneumoniae, Lyme, Epstein-Barr or other infectious diseases
actually damage veins and their valves. Is the Infection still ongoing, or has
it passed leaving a damaged vascular system? Some believe by treating the
infection through antiobiotics the inflammatory reaction to the infection can be
halted, thus restoring the vein to its proper function and preventing the blood
reflux. Again the veins are implicated. However, long term treament with
antibiotics obviously requires a Medical expert I was treated for a chronic
infection using Standard Process Cataplex A-C, Collagen C, Calcium Magnesium and
Zinc (among other things.) I believe a naturopathic protocol superior and less
toxic than antibiotics. (imagine how the intestinal flora reacts to all those
antibiotics.)
IMPORTANT: I believe that in the early
Relapse/Remit phase one has the greatest chance to entirely heal the myelin
sheath/nerve damage before it has actually dried up into a "scab" or scar. I did
so within 4 years of the first big "attack". (Dr. Sclafani, the pioneering Interventional Radiologist,
has observed as well that recoveries after angioplasty are most dramatic in the early phase of MS).
But now for me (26 years later) it is more a question of preventing further decline.
4) Consider the STRUCTURAL factor. This means consulting with body manipulators
such as Chiropractors or Osteopaths. Dental misalignment may be an issue. Once
the area of blockage is identified, you may be able to treat yourself regularly
with massage, stretching etc.
5) Consider the BLOOD CIRCULATION factor. Acupuncture, Self Acupressure, Ayervedic Massage,
Osteopathic, Chiropractic, Swimming can all enhance blood circulation without
the risk of angioplasty. I am now able to control the blood reflux through self
acupressure on a daily basis. Acupuncture treatments must focus on the meridians
which pass from the head, down the neck and across the shoulders or down the
back, the gall bladder and bladder meridiens. Otherwise they probably won't be
effective on the blood circulation.
6) ANGIOPLASTY decision. Begin by seeking NON-INVASIVE diagnosis of your veins. A
quick look on Google brings up a clinic called Privatescan in Brussels which
claims to use non-invasive CCSVI investigation techniques and diagnosis
protocols - CT Scanner from G.E., CT venography with contrast agent, EchoDoppler
Duplex from GE, 3.0 tesla MRI Scanner (MRI venography) with G.E. contrast. (I
need to research this further, but so can you. I'm not promoting any clinic or
therapist for angioplasty.) If you decide on
angioplasty, it is imperative that the Doctor use an INTRAVENOUS ULTRASOUND to
open the stenosed veins so he can see what he is doing and avoid injury to the
vein wall. Also, be assured of follow-up care.
If one has a serious vein obstruction, deformation or the vein is simply missing, angioplasty
may be the only solution. It of course would be grossly unfair to imply one
hasn't tried to heal if the veins are defective or even missing. It would be
like admonishing an amputee that if he really works on it the arm will grow
back. Of course it won't. Annette Funicello very generously and courageously
published a video showing how far her disease had progressed as well as the
results of an angioplasty procedure. One jugular had been entirely blocked, the
other 70% blocked. She and her husband Gene Holt believe this is the only
treatment which has helped her over the past 25 years of illness and she wants
to promote the CCSVI theory to help others, believing if she had been treated
years ago she wouldn't now be paralyzed.
IMMUNOSUPPRESSIVE DRUGS- If one has a serious physical vein blockage which causes a blood reflux,
probably one will require medication to minimize CNS damage until angioplasty
can release the blood flow. In this case the Neurologist would seem to be the
best therapist. Tricky issue.
I want to encourage the newly diagnosed to
act in their own self interest. MS isn't a death sentence, it's a call to
change, the sooner the better and with you as an active participant.
These remarks are above all an admonishment to myself for
having let myself fall apart after my first dramatic healing. A kick in the
butt you might say. But now that the CCSVI theory is on the table, we have every
possibility to take control of our fate. And in the first instance, that means
ME. I'm now going to finish my personal history with particular emphasis on MY
MISTAKES.
Once the diagnosis has come down, it's a demyelating
disease, probably MS, step back and relax, at least you don't have a brain
tumour. And stress and anxiety will only make matters worse. Imagine the blood
backing up, flooding your brain and/or central nervous system. You have to stop
that reflux as soon as possible. That means RELAX. All the diagnosic tests in
themselves are stressful, so step back from all that and begin to inform yourself.
Marc Stecker of Wheelchair Kamikaze believes that the
immunosuppressive drugs developed over the last 20 years are the best treatment
now available since they appear to have slowed disease progression for
relapse/remit cases. However in his blog post of March 31, 2013 he admitted that
"none of the other MS drugs have helped me."
(Once you hit the Progressive stage, you might as well turn
to alternatives since nothing else is available.) Nonetheless reports of drug
efficacy are contradictory and reported side effects often serious, even fatal.
Drugs are not the only option available although it's likely the only one the
Neurologist will offer. Neurologists are treating an immune system reaction to a
blood reflux. They are treating a secondary problem. Consider treating the
original problem instead. But to do that you will have to take matters into your
own hands. I think it's crazy to launch into potentially toxic drugs without trying
alternative therapies.
I believe a major illness is a call to change.
Either one participates in the transformation, or one will be transformed
against one's will. I also believe true healing requires a healing partnership.
The best healer acts as a faclitator in one's own self transformation, not as a
director. The worst thing one can do is act like a passive object on whom an
omnipotent Doctor works his "magic". An alternative healer
(naturopath/nutritionist/kinesiologist???) who can help you think through the
various options can be an important complement to "official" medical contacts.
Now is the time to act.
Refer to the blog entry - MS Cure or Control: A Review
1) First, Stop the "attack" which is actually a blood reflux. I've found a neck
massage forcing the blood down towards the heart is enough to stop one for me.
An Acupuncture trreatment - the Gall Bladder Meridian and Bladder Meridian must
be treated (see Acupuncture blog entry) - has worked for me. Your problem may be
structural, so a Chiropractic or Osteopath's adjustment on the Atlas and upper
cervicals might release the brain fluids. The Neurologist might have a drug
which will stop the attack, though I wouldn't take something that you can't get
off of after the crisis is passed. (My own early experience of an MS attack
meant 6 weeks - 2 weeks of "attack" (the blood must be flooding the CNS), 2
weeks of "scarring" when the myelin dries up, and 2 weeks to recover most of
lost function, leaving some deficits.)
2) Once the crisis is passed, get busy on finding a practical solution. First off,
analyse what stress factor triggered off the attack. Was it emotional,
professional pressure, or some kind of poisoning such as too much aspartame? An
accident which injured the head-neck,back? Keep a journal and note whatever
issues trigger off a problem, play the detective in your own life. Then make the
necessary adjustments.
3) Consider the TOXICITY factor. Stop Aspartame and other food additives at once. (Don't bother with the
mercury dental amalgams, at least not at first. Having them removed can even
increase the toxicity if badly done, and there are many other factors to
consider first.) I include food intolerances in the TOXICITY category.
DIET: There are apparently 4 labs in Paris which take blood samples to test up to 250 items for
food intolerances (which as my Kinesiologist said, are not the same phenomena as allergies.) It is good to know
that holistic Doctors are ordering blood work to determine these intolerances since most people have more
confidence in an "objective" physical measure. I favour Kinesiology to determine the ideal
personalized diet, but a good therapist may be difficult if not impossible to
find and for some the method (muscle testing) may be too subjective. So
find a good naturopath/nutritionist/holistic Doctor. Until you can find help, assume you have a gluten and lactose (dairy) intolerance.
Check out the Paleo-Macro diet on this site. The Paleolithic Diet developed by Roger
MacDougall can be found on Wikipedia. Jimmylegs on the ThisIsMs.com site is
their on site diet expert who gives referrals to other resources.
DETOXIFICATION should be part of the therapy.
SUPPLEMENTS Besides the vitamins A, B Complex, C, D, E, include
Calcium Magnesium, Omega 3, Zinc, Evening Primrose Oil, Seek good advice and do
your own research.
INFECTION: Some believe that infections such
as Chlamydia Pneumoniae, Lyme, Epstein-Barr or other infectious diseases
actually damage veins and their valves. Is the Infection still ongoing, or has
it passed leaving a damaged vascular system? Some believe by treating the
infection through antiobiotics the inflammatory reaction to the infection can be
halted, thus restoring the vein to its proper function and preventing the blood
reflux. Again the veins are implicated. However, long term treament with
antibiotics obviously requires a Medical expert I was treated for a chronic
infection using Standard Process Cataplex A-C, Collagen C, Calcium Magnesium and
Zinc (among other things.) I believe a naturopathic protocol superior and less
toxic than antibiotics. (imagine how the intestinal flora reacts to all those
antibiotics.)
IMPORTANT: I believe that in the early
Relapse/Remit phase one has the greatest chance to entirely heal the myelin
sheath/nerve damage before it has actually dried up into a "scab" or scar. I did
so within 4 years of the first big "attack". (Dr. Sclafani, the pioneering Interventional Radiologist,
has observed as well that recoveries after angioplasty are most dramatic in the early phase of MS).
But now for me (26 years later) it is more a question of preventing further decline.
4) Consider the STRUCTURAL factor. This means consulting with body manipulators
such as Chiropractors or Osteopaths. Dental misalignment may be an issue. Once
the area of blockage is identified, you may be able to treat yourself regularly
with massage, stretching etc.
5) Consider the BLOOD CIRCULATION factor. Acupuncture, Self Acupressure, Ayervedic Massage,
Osteopathic, Chiropractic, Swimming can all enhance blood circulation without
the risk of angioplasty. I am now able to control the blood reflux through self
acupressure on a daily basis. Acupuncture treatments must focus on the meridians
which pass from the head, down the neck and across the shoulders or down the
back, the gall bladder and bladder meridiens. Otherwise they probably won't be
effective on the blood circulation.
6) ANGIOPLASTY decision. Begin by seeking NON-INVASIVE diagnosis of your veins. A
quick look on Google brings up a clinic called Privatescan in Brussels which
claims to use non-invasive CCSVI investigation techniques and diagnosis
protocols - CT Scanner from G.E., CT venography with contrast agent, EchoDoppler
Duplex from GE, 3.0 tesla MRI Scanner (MRI venography) with G.E. contrast. (I
need to research this further, but so can you. I'm not promoting any clinic or
therapist for angioplasty.) If you decide on
angioplasty, it is imperative that the Doctor use an INTRAVENOUS ULTRASOUND to
open the stenosed veins so he can see what he is doing and avoid injury to the
vein wall. Also, be assured of follow-up care.
If one has a serious vein obstruction, deformation or the vein is simply missing, angioplasty
may be the only solution. It of course would be grossly unfair to imply one
hasn't tried to heal if the veins are defective or even missing. It would be
like admonishing an amputee that if he really works on it the arm will grow
back. Of course it won't. Annette Funicello very generously and courageously
published a video showing how far her disease had progressed as well as the
results of an angioplasty procedure. One jugular had been entirely blocked, the
other 70% blocked. She and her husband Gene Holt believe this is the only
treatment which has helped her over the past 25 years of illness and she wants
to promote the CCSVI theory to help others, believing if she had been treated
years ago she wouldn't now be paralyzed.
IMMUNOSUPPRESSIVE DRUGS- If one has a serious physical vein blockage which causes a blood reflux,
probably one will require medication to minimize CNS damage until angioplasty
can release the blood flow. In this case the Neurologist would seem to be the
best therapist. Tricky issue.
I want to encourage the newly diagnosed to
act in their own self interest. MS isn't a death sentence, it's a call to
change, the sooner the better and with you as an active participant.
These remarks are above all an admonishment to myself for
having let myself fall apart after my first dramatic healing. A kick in the
butt you might say. But now that the CCSVI theory is on the table, we have every
possibility to take control of our fate. And in the first instance, that means
ME. I'm now going to finish my personal history with particular emphasis on MY
MISTAKES.