MS NEWS ITEM NUMBER ONE : CCSVI USA
The Dayton, Ohio Interventional Radiology Clinic has been in the news.
Re : Interventional Radiology. Quotes from Thisisms.com forum. I am "Vesta"
On May 7, 2019 81Charger asked
« I'm just wondering if anyone has heard anything from anyone that has had the procedure done at this place in Ohio. I didn't realize that you could still get it done anywhere until I read about this place yesterday.
On May 8 patientx comments
If you're willing to give them your money, they will probably take it. Before doing that, look up those who decided to see Dr. Dake, Arata, McGuckin, etc.(My note : These are early IR practitioners of venoplasty for CCSVI. Some risk losing Medical certification for what I consider to be a witch hunt launched by the MS Big Pharma/Neurologist lobby.)
81Charger replied ↑
Thu May 09, 2019 5:08 am
I know what you are saying but there are some on here that say that CCSVI has really helped them. If I could get help with the heat intolerance that would be a big help for me.
Vesta (That’s me) replied.
The following was recently posted on the Vascular Connection Facebook page. I know nothing about the Dayton Clinic but I think one can assume much has been learned and corrected since Dr Dake's work at Stanford. Ask questions, be informed. Insist for instance on the IVUS. "violin" underwent CCSVI Venoplasty by Dr Arata to clean out her veins after learning this is recommended for chronic Lyme disease and it helped her enormously. She was told to repeat the procedure, but Dr Arata is apparently under attack. I object to this witch hunt against early practitioners of CCSVI for MS since it is POLITICALLY motivated.. A MD can kill you legally if his performance is consistent with the « community standard. » Great quote below by Jim Gibson on the Vascular Connection Facebook.
Jim Gibson Had this done in January. My wife can actually feel our toes and her shins for the first time in 10 years her balance is a lot better and her brain fog is gone. 70% blockage on the left 58% on the right. We had it done in Dayton Ohio. Well worth the money. Screw the MS Society of America! Thank you very much doctor Zamboni for inventing this procedure God bless.
Under Vascular Facebook
4LikeReply2wEdited Connection
I then looked up the Dayton Interventional Radiology Clinic.
About Us | Dayton Interventional Radiology
daytonir.com/about-us/
Under CCSVI is written :
« We are currently the only center in Ohio offering this treatment. »
They do use the IVUS. Bonita’s testimonial is worth a viewing.
As to fees, keep in mind that it costs $10,000 to have a baby without complications in the USA where medical care is grossly overpriced. Before Dr Sclafani stopped providing this service I think the fee was $10,000. (He stopped because the clinic where he works didn’t want to take the risk of a lawsuit now that the MS Allopathic Big Pharma Lobby has gone on the warpath to stamp out CCSVI Venoplasty treatment for MS in the USA..)
CCSVI Alliance and ThisisMs.com www.thisisms.com/ are the websites I consult for updated information on CCSVI. CCSVI Alliance www.ccsvi.org/
MS NEWS ITEM NUMBER TWO ; A VISION "CURE"?
Retinal Tissue Perfusion reduced by 42% in MS !!!
by leonardo » Sat May 04, 2019 2:12 pmhi,
https://www.ncbi.nlm.nih.gov/pubmed/31046490
"Retinal Tissue Perfusion in Patients with Multiple Sclerosis.
Abstract
PURPOSE: The goal of this work was to determine whether the retinal tissue perfusion (RTP) is impaired in patients with multiple sclerosis (MS).
METHODS: Seventy-four patients [66 relapsing-remitting MS (RRMS) and 8 clinically isolated syndrome (CIS)] and 74 age- and gender-matched healthy controls were recruited. RTP was calculated as the retinal blood flow (measured using retinal function imager) supplying the macular area divided by the corresponding tissue volume of the inner retina from the inner limiting membrane to the outer plexiform layer, as measured by ultrahigh resolution optical coherence tomography.
RESULTS: The RTP in the MS group was 2.37 ± 0.59 nl/s/mm3 (mean ± standard deviation), which was significantly lower than the control group (4.06 ± 0.89 nl/s/mm3, P < 0.001), reflecting a decrease of 42%. The blood flow volume was 2.50 ± 0.50 nl/s in MS, which was 45% lower than in the control group (4.56 ± 0.91 nl/s, P < 0.001). In addition, the tissue volume of the inner retina was significantly lower than in the control group (P < 0.05). The RTP in patients with MS was significantly correlated with the retinal blood flow volume (r = 0.84, P < 0.001) and retinal tissue volume (r = -0.56, P < 0.001). However, the retinal blood flow in patients with MS was not related to the tissue volume (r = -0.06, P = 0.59).
CONCLUSIONS: Impaired retinal tissue perfusion occurred in patients with MS, which could be developed as a possible biomarker in monitoring disease progression in MS."
Frodo, who I believe is trained in medical research, posts almost daily current research on MS. He responded to Leonardo’s post as follows :
FRODO MAY 5, 2019-05-11
« Interesting. Whatever MS is, it is clear that it has nothing to do with the standard autoimmune model »
Me again : I find this research is further confirmation that MS is a disorder of central nervous system fluid circulation.
And further, we have a potential solution for the loss of vision in MS.
ElliotB, who tends to be very skeptical about the CCSVI theory, enjoyed dramatic improvement in his eyesight after using gristy56’s « desatascador ». A small, hand held « motor » device acting as a magnet draws the iron magnetite through the veins to the aorta and then down through the kidneys where they are chelated before being excreted by urination. To me this is an exciting development.
Re: Desatascador An informal, totally unscientific 'test'
ElliotB wrote:
"After 34 years of MS I'm still surprised by the small improvements"...
ElliotB's question: Why do you think the vision improves the way it does? I am still maintaining the improvements I experienced.
Vesta's response: If you think of the magnetite as a nano-particle which pokes holes in the eye vessels, that makes perfect sense to me, more so than a simple venous blood reflux. So maybe by expelling the magnetite you are protecting your eyes.
Gristy56, who is the electrical engineer Simon Ewart-Grist, has taken into account the known phenomena of magnetite in the blood and the earth’s magnetic field. That his theory is unorthodox doesn’t negate it. And if one’s vision improves, by following Simon’s suggestions, why not try it? You can find his paper here on the September 29 and October 22, 2018 blog posts, the "Desatascador"
CONCLUSION :
I feel now I can re-write my main paper, that I can weave these various factors into a whole fabric. On May I wrote
I believe Cheerleader sees MS as veinous arteriosclerosis as does "violin". Violin has been advised to take EDTA capsules and/or undergo EDTA IV Chelation. Diet change can apparently treat arteriosclerosis in 2 weeks, hence the importance of an anti-inflammatory diet in MS. Both gristy56 and I disagree with current MS research which sees MS as a chemical rather than a physical problem.His "desatascador" treatment is intended to eliminate magnetite found in the blood which he believes damages the myelin. Advised that venoplasty for CCSVI could help someone with chronic Lyme disease, "violin" felt much better after her venoplasty treatment cleaned out her veins.
So let's put this together. Let's say that EBV illness (Mononucleosis) causes vein inflammation which clogs up the veins to impede blood flow. Blocked magnetite may damage myelin as well, for example on the optic nerve as illustrated by ElliotB's recovery using the "desatascador" (which shouldn't be ignored).
Let's start with the idea that MS is a CNS fluid circulation problem which can be caused by multiple factors. Infections and poor diet may obstruct the veins which need to be addressed as treatment. The immune system reaction is secondary. Better to treat the primary problem.
Tags: Multiple Sclerosis, CCSVI Alliance, ThisisMS.com, Dayton Interventional Radiology Clinic, Dr Zamboni, Desatascador, Simon Ewart-Grist
.
The Dayton, Ohio Interventional Radiology Clinic has been in the news.
Re : Interventional Radiology. Quotes from Thisisms.com forum. I am "Vesta"
On May 7, 2019 81Charger asked
« I'm just wondering if anyone has heard anything from anyone that has had the procedure done at this place in Ohio. I didn't realize that you could still get it done anywhere until I read about this place yesterday.
On May 8 patientx comments
If you're willing to give them your money, they will probably take it. Before doing that, look up those who decided to see Dr. Dake, Arata, McGuckin, etc.(My note : These are early IR practitioners of venoplasty for CCSVI. Some risk losing Medical certification for what I consider to be a witch hunt launched by the MS Big Pharma/Neurologist lobby.)
81Charger replied ↑
Thu May 09, 2019 5:08 am
I know what you are saying but there are some on here that say that CCSVI has really helped them. If I could get help with the heat intolerance that would be a big help for me.
Vesta (That’s me) replied.
The following was recently posted on the Vascular Connection Facebook page. I know nothing about the Dayton Clinic but I think one can assume much has been learned and corrected since Dr Dake's work at Stanford. Ask questions, be informed. Insist for instance on the IVUS. "violin" underwent CCSVI Venoplasty by Dr Arata to clean out her veins after learning this is recommended for chronic Lyme disease and it helped her enormously. She was told to repeat the procedure, but Dr Arata is apparently under attack. I object to this witch hunt against early practitioners of CCSVI for MS since it is POLITICALLY motivated.. A MD can kill you legally if his performance is consistent with the « community standard. » Great quote below by Jim Gibson on the Vascular Connection Facebook.
Jim Gibson Had this done in January. My wife can actually feel our toes and her shins for the first time in 10 years her balance is a lot better and her brain fog is gone. 70% blockage on the left 58% on the right. We had it done in Dayton Ohio. Well worth the money. Screw the MS Society of America! Thank you very much doctor Zamboni for inventing this procedure God bless.
Under Vascular Facebook
4LikeReply2wEdited Connection
I then looked up the Dayton Interventional Radiology Clinic.
About Us | Dayton Interventional Radiology
daytonir.com/about-us/
Under CCSVI is written :
« We are currently the only center in Ohio offering this treatment. »
They do use the IVUS. Bonita’s testimonial is worth a viewing.
As to fees, keep in mind that it costs $10,000 to have a baby without complications in the USA where medical care is grossly overpriced. Before Dr Sclafani stopped providing this service I think the fee was $10,000. (He stopped because the clinic where he works didn’t want to take the risk of a lawsuit now that the MS Allopathic Big Pharma Lobby has gone on the warpath to stamp out CCSVI Venoplasty treatment for MS in the USA..)
CCSVI Alliance and ThisisMs.com www.thisisms.com/ are the websites I consult for updated information on CCSVI. CCSVI Alliance www.ccsvi.org/
MS NEWS ITEM NUMBER TWO ; A VISION "CURE"?
Retinal Tissue Perfusion reduced by 42% in MS !!!
by leonardo » Sat May 04, 2019 2:12 pmhi,
https://www.ncbi.nlm.nih.gov/pubmed/31046490
"Retinal Tissue Perfusion in Patients with Multiple Sclerosis.
Abstract
PURPOSE: The goal of this work was to determine whether the retinal tissue perfusion (RTP) is impaired in patients with multiple sclerosis (MS).
METHODS: Seventy-four patients [66 relapsing-remitting MS (RRMS) and 8 clinically isolated syndrome (CIS)] and 74 age- and gender-matched healthy controls were recruited. RTP was calculated as the retinal blood flow (measured using retinal function imager) supplying the macular area divided by the corresponding tissue volume of the inner retina from the inner limiting membrane to the outer plexiform layer, as measured by ultrahigh resolution optical coherence tomography.
RESULTS: The RTP in the MS group was 2.37 ± 0.59 nl/s/mm3 (mean ± standard deviation), which was significantly lower than the control group (4.06 ± 0.89 nl/s/mm3, P < 0.001), reflecting a decrease of 42%. The blood flow volume was 2.50 ± 0.50 nl/s in MS, which was 45% lower than in the control group (4.56 ± 0.91 nl/s, P < 0.001). In addition, the tissue volume of the inner retina was significantly lower than in the control group (P < 0.05). The RTP in patients with MS was significantly correlated with the retinal blood flow volume (r = 0.84, P < 0.001) and retinal tissue volume (r = -0.56, P < 0.001). However, the retinal blood flow in patients with MS was not related to the tissue volume (r = -0.06, P = 0.59).
CONCLUSIONS: Impaired retinal tissue perfusion occurred in patients with MS, which could be developed as a possible biomarker in monitoring disease progression in MS."
Frodo, who I believe is trained in medical research, posts almost daily current research on MS. He responded to Leonardo’s post as follows :
FRODO MAY 5, 2019-05-11
« Interesting. Whatever MS is, it is clear that it has nothing to do with the standard autoimmune model »
Me again : I find this research is further confirmation that MS is a disorder of central nervous system fluid circulation.
And further, we have a potential solution for the loss of vision in MS.
ElliotB, who tends to be very skeptical about the CCSVI theory, enjoyed dramatic improvement in his eyesight after using gristy56’s « desatascador ». A small, hand held « motor » device acting as a magnet draws the iron magnetite through the veins to the aorta and then down through the kidneys where they are chelated before being excreted by urination. To me this is an exciting development.
Re: Desatascador An informal, totally unscientific 'test'
ElliotB wrote:
"After 34 years of MS I'm still surprised by the small improvements"...
ElliotB's question: Why do you think the vision improves the way it does? I am still maintaining the improvements I experienced.
Vesta's response: If you think of the magnetite as a nano-particle which pokes holes in the eye vessels, that makes perfect sense to me, more so than a simple venous blood reflux. So maybe by expelling the magnetite you are protecting your eyes.
Gristy56, who is the electrical engineer Simon Ewart-Grist, has taken into account the known phenomena of magnetite in the blood and the earth’s magnetic field. That his theory is unorthodox doesn’t negate it. And if one’s vision improves, by following Simon’s suggestions, why not try it? You can find his paper here on the September 29 and October 22, 2018 blog posts, the "Desatascador"
CONCLUSION :
I feel now I can re-write my main paper, that I can weave these various factors into a whole fabric. On May I wrote
I believe Cheerleader sees MS as veinous arteriosclerosis as does "violin". Violin has been advised to take EDTA capsules and/or undergo EDTA IV Chelation. Diet change can apparently treat arteriosclerosis in 2 weeks, hence the importance of an anti-inflammatory diet in MS. Both gristy56 and I disagree with current MS research which sees MS as a chemical rather than a physical problem.His "desatascador" treatment is intended to eliminate magnetite found in the blood which he believes damages the myelin. Advised that venoplasty for CCSVI could help someone with chronic Lyme disease, "violin" felt much better after her venoplasty treatment cleaned out her veins.
So let's put this together. Let's say that EBV illness (Mononucleosis) causes vein inflammation which clogs up the veins to impede blood flow. Blocked magnetite may damage myelin as well, for example on the optic nerve as illustrated by ElliotB's recovery using the "desatascador" (which shouldn't be ignored).
Let's start with the idea that MS is a CNS fluid circulation problem which can be caused by multiple factors. Infections and poor diet may obstruct the veins which need to be addressed as treatment. The immune system reaction is secondary. Better to treat the primary problem.
Tags: Multiple Sclerosis, CCSVI Alliance, ThisisMS.com, Dayton Interventional Radiology Clinic, Dr Zamboni, Desatascador, Simon Ewart-Grist
.
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