disease, probably MS, step back and relax, at least you don't have a brain
tumour. And stress and anxiety will only make matters worse. Imagine the blood
backing up, flooding your brain and/or central nervous system. You have to stop
that reflux as soon as possible. That means RELAX. All the diagnostic tests in
themselves are stressful, so step back from all that and begin to inform yourself.
This is where I began. But now I recognize that the obstruction and/or restriction of ANY fluid - blood, cerebrospinal, lymphatic, glymphatic – which bathes the brain and spine can manifest as Multiple Sclerosis. Finding and overcoming the restriction becomes the challenge. In my case the solution was very simple, which makes my ignorance at the time of my “attacks” all the more galling. All I needed to do was to get the blood circulating out of my head with a massage or acupuncture treatment. After I read it during the summer of 2010, Dr. Zamboni’s 2008 CCSVI paper freed me from all but minor MS progression. But now I’m stuck with the cane and a right leg which is stiff and a handicapped right arm.
Of course rather than a massage Dr. Zamboni recommended a PTA procedure in which the vein is dilated with a balloon to free obstructed blood flow. Perhaps if I had been lucky like Jeff Beal who underwent venoplasty at Stanford in spring 2009 complete with a stent to prevent the jugular vein’s restenosis (see his wife’s blog Joan Beal “The Vascular Connection”) I might have been entirely cured. Thirty five years after my first known MS attack in 1980 the damage has been done and I doubt Venoplasty now will be of much use. In fact the risks would seem to outweigh any potential benefits in my case.
IF fluids are obstructed by a bone – perhaps as the consequence of an accident – that is a more serious problem requiring professional intervention. In the best case, a chiropractor, the more serious case, a neurosurgeon.
There are two fundamental schools of thought about MS etiology (causation) and treatment. One is biochemical, the other functional (fluid circulation).
Biochemical includes the auto-immune theory, bacterial infection, viral infection (Epstein Barr especially), vitamin deficiency (eg Vit D3 or Vit B12), nutritional deficiencies, toxicity exposure.
On the ThisisMs.com site fluid circulation issues are treated under the threads CCSVI and CCVBP.
Actually, both ideas should be considered. Dr. Terry Wahls is known for a healing diet which emphasizes nourishment of the brain’s Mitochondria. However, she also recommends using an Electronic Muscle Stimulation (EMS)device on the lower back which stimulates both blood flow and cerebrospinal circulation. In other words her treatment protocol embraces both the biochemical and functional. It is misleading not to say so.
So let’s start with the scientific observation that it takes twice as long for the blood to circulate from the heart through the brain as “normals”. “Cerebral Circulation Time is Prolonged and Not Correlated with EDSS in Multiple Sclerosis Patients: A Study Using Digital Subtracted Angiography http://www.plosone.org/article/fetchObject.action?uri=info%3Adoi%2F10.1371%2Fjournal.pone.0116681&representation=PDF
There may be a zillion reasons for this phenomena which would explain the great variety in individual “cures.” Some have mocked others who very excitedly declare they have “cured” their MS. Well, maybe they have, but their individual cure won’t be universal. As an example currently there is much excitement over the Coimbra protocol using huge doses of Vitamin D3 (which requires close supervision.)
In the meantime, anyone who seriously seeks to heal MS can’t ignore nutrition. Let’s start by looking at the MS healing recipe cooked up by Ashton Embry, PhD for his son Matt who describes it on his site http://www.mshope.com.
His nutritional recommendations are very straightforward –
No Dairy, No Glutens, No Legumes, Reduced Sugar, No Soy, No Personal Allergy substances. Reduce Saturated Fat, Omega 6 Poly unsaturated fat, Reduce Grains, No beer, Red Wine maybe OK
An Elisa Blood Food Allergy test can determine personal allergies
(My opinion interjected - a competent Kinesiologist can personalize and refine these recommendations. One’s own personal diet may not be so drastic.)
Recommended foods - low fat animal protein, fish, fruits and lots of vegetables
Below I am going to quote directly from his site. Since 1984 I have relied on my San Francisco Kinesiologist/Nutritionist for dietary advice and have used Standard Process supplements. In the future this may no longer be possible. So I am pleased to find Matt’s supplement suggestions quoted below.
MATT EMBRY SPEAKING
Vitamin D3 8000 -10,000 IU. This dosage is completely safe and is best from pills or drops. http://www.direct-ms.org/plannedresearch.html
Omega 3 essential fatty acids
5 grams of EPA+DHA. This is best gotten from fish oil such as salmon oil or cod liver oil. A fish oil capsule in most cases contains only .3 grams EPA + DHA and thus at least 15 capsules would be needed. A much easier and faster way to get 5 g of DHA + EPA is to use 2 tablespoons of Carlson lemon-flavoured cod liver oil. This brand is good because such a dosage contains 5000 IU of vitamin A which is the ideal amount. The addition of 1 tablespoon of flax oil can be of value because it contains alpha linolenic acid, a precursor to EPA and DHA.
Calcium 800 - 1000 mg
Magnesium 500 - 600 mg
Probiotics 6-9 capsules a day
Vitamin A 5000 IU
(Do not exceed this amount as high doses can counter the beneficial effects of vitamin D. This amount can be easily consumed in conjunction with omega 3 EFA by using Carlson lemon-flavoured cod liver oil.)
Vitamin B Complex 100 mg
Vitamin B12 1-2 mg (1000 – 2000 mcg)
Vitamin C 1 g
Vitamin E (natural) 200 IU
Zinc 20-30 mg
Copper 1-2 mg
Selenium 100 mcg
Manganese 20 mg
Iodine 300 mcg
These can be expensive and only one or two would be needed if lots of berries and vegetables are consumed.
Grape Seed Extract 2-4 capsules
Gingko Biloba 120 mg
Alpha Lipoic Acid 1200 mg
Coenzyme Q10 100 mg
EGCG Max (epigallocatechin-3-gallate) 2 capsules (700 mg each)
Quercetin 400 mg
Bromelain 400 mg”
END OF MATT EMBRYS SUGGESTIONS
Regardless of the origin of MS poor blood circulation through the brain, the above suggestions should be healing “for whatever ails you”.
Lab tests suggested by kw202 on the Thisisms.com on Friday Nov 20, 2015.
Thyroid, liver and kidney functions
Oral glucose tolerance
Antibodies to nerve components (MAG antibody)
Antibodies related to celiac
Hepatitis C and B
Question: Can one really find an MD who can order these tests and knows how to interpret the results and what treatments to recommend??
Yes, it is a good idea to eliminate other pathologies such as Lyme disease. One should verify that symptoms are not caused by a Vitamin B12 deficiency. Increase the Vit D level. (Jeff Beal began at 17 g/ml and is now at 70 g/ml. Mine is at 57 g/ml. Maybe I should try to boost it a bit.) According to Joan Beal Vitamin D boosts remyelination, prevents brain atrophy, strengthens endothelial cells and delays MS progression. Some MSers want to address the Epstein Barr virus. Others the Chlamydia pneumonia.
In this direction, the following advice comes from an M.D. on Thisisms.com
by chenman » Sat Nov 21, 2015 3:49 pm
first of all I am confident that MS should not stay as scary as it uses to be. After searching on MS causation ("etiology") for more than 20 years (I am an MD and suspected MS for myself in the early 1990s) I am pretty sure that we will be able to do a causal therapy in the forseeable future.
Lyndacarol stresses the vitamin B12 tests, which is mandatory...
I think neuroborreliosis (the neuro version of Lyme disease) to be an equally important possibility. This can affect both peripheral nerves as well as the CNS. The serological tests are not completely reliable. Therefore your history is of even greater importance...
Such puzzle pieces add to the possibility that you might be chronically infected, as a possible cause for your scary symptoms, and at the same time signaling the chance that such an infection could be cured or stopped with 2-3 weeks of the "acne drug" doxycycline. (Doxy is an antimicrobial on the WHO list of essential drugs, is in use for 50 years, around the world, no surprise unwanted effects to be expected any more.)
Every GP knows it and can prescribe it (patents expired decades ago, dirt cheap...
Btw: a recent double blind study from Canada proved high effectiveness of minocycline (very similar to doxycycline) in preventing the transit from a first demyelinating event ("CIS" = clinically isolated syndrome) to the MS diagnosis, i.e. see this report from an MS conference in Barcelona / Spain in October:
Cool down, the prospects are brighter than you think.
I would add that since poor health by itself causes body tension which can restrict fluid flow, every effort should be made to maximize health. We all should know what that means. Stop poisoning yourself, detoxify, eat well, seek out appropriate supplements, use energy balancing techniques such as acupuncture, acupressure, yoga, aryuvedic massage, any massage. Think vascular health, brain health, grey matter as well as white matter health.
To diagnose the functional aspects of one’s condition, a good place to begin is Chiropractor Dr. Michael Flanagan’s excellent paper recently published on
Neurology Research International
Volume 2015 (2015), Article ID 794829, 20 pages
The Role of the Craniocervical Junction in Craniospinal Hydrodynamics and Neurodegenerative Conditions
Michael F. Flanagan1,
Copyright © 2015 Michael F. Flanagan. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
The craniocervical junction (CCJ) is a potential choke point for craniospinal hydrodynamics and may play a causative or contributory role in the pathogenesis and progression of neurodegenerative diseases such as Alzheimer’s disease, Parkinson’s disease, MS, and ALS, as well as many other neurological conditions including hydrocephalus, idiopathic intracranial hypertension, migraines, seizures, silent-strokes, affective disorders, schizophrenia, and psychosis. The purpose of this paper is to provide an overview of the critical role of the CCJ in craniospinal hydrodynamics and to stimulate further research that may lead to new approaches for the prevention and treatment of the above neurodegenerative and neurological conditions. ..
In brief, the CCJ is a potential choke point for blood and CSF flow between the cranial vault and spinal canal that can cause faulty craniospinal hydrodynamics and subsequent chronic ischemia, edema, and hydrocephalus. Upright posture and motion of the cervical spine compound the strains and deformation of blood and CSF pathways of the CCJ further contributing to blockage of flow…
2. Arteries and Veins of the CCJ
The arteries and veins of the CCJ play key roles in craniospinal hydrodynamics../
In 1988 this author proposed that neurodegenerative diseases may be due to obstruction and back pressure in the accessory drainage system of the brain as it passes through the CCJ to connect to the vertebral veins [20, 21]. Obstruction can occur due to many types of malformations and misalignments of the CCJ More recently, in 2009, Zamboni et al. proposed that MS can be caused by venous. insufficiency due to stenosis or faulty valves in jugular veins . The many different types of malformations and misalignments of the CCJ that can potentially cause vertebral venous insufficiency, however, far outnumber those due to jugular insufficiency [31–53, 85–87]. Moreover, the vertebral veins are the primary drainage routes used to drain the brain during upright posture [20–30]…
In brief, craniospinal hydrodynamics are a complex interaction between brain, blood, and CSF in the relatively closed compartments of the cranial vault and spinal canal compounded by cardiac cycles and arterial pulsations that cause continuous fluctuations in blood volume and ICP. .. Manual and surgical methods for correcting obstructions, as well as manipulation of blood and CSF flow, may help to restore or improve faulty craniospinal hydrodynamics in certain cases and decrease the prevalence, progression, and severity of neurodegenerative and other neurological conditions. Further studies using upright and cine MRI coupled with computer modeling are needed to determine the role of malformations and misalignments of the CCJ and spondylosis, stenosis and scoliosis in the lower spine in faulty craniospinal hydrodynamics, and neurodegenerative and neurological conditions, as well as the impact of the manual, mechanical, and surgical correction of structural strains and faulty craniospinal hydrodynamics on patient pathology and symptomatology.” End of quote (my emphasis)
I believe one should be examined for skeletal obstructions. The ideal equipment is the FONAR upright Cine MRI invented by Dr. Damadian (who by the way invented the MRI now at the center of diagnosis and treatment with Disease Modifying Drugs by the Neurologists. Unfortunately the profession so enamored with the auto-immune definition of MS has been ignoring the implications of Dr. Damadian’s more recent work.) Obstructions in cerebrospinal fluid flow are less likely to be observed by MRIs when the patient is recumbent. Also, Neurologists are looking for brain/spinal lesions considered markers for disease activity rather than the condition of cerebro-spinal fluid flow. For diagnosis of CSF flow there are apparently 15 FONAR sites in the USA and one in London. (http://www.fonar.com/news/052114.htm)
At this time, Chiropractors familiar with spinal structural conditions are probably best equipped to study, diagnose and even treat skeletal obstructions of blood and cerebrospinal fluid flow through the central nervous system. Dr Michael Flanagan “upright doc” on the Thisisms.com website (CCVBP) recommends use of the COX Technic Flexion-Distraction tables (the most advanced is now version 8) to treat spinal conditions. NUCCA (National Upper Cervical Chiropractic Association) Chiropractors specialize in treating the Cervicals and the Atlas Orthogonal (C1). Some Dentists believe that MSers should have their TMJ (Temporomandibular Joint Disorders) treated to relieve fluid flow through the brain. I myself think the entire head/neck/back structure needs to be calibrated, that treating the jaw in isolation cannot possibly overcome a structural imbalance.
I will discuss Venoplasty in a future post.
Tags: MS treatment, MS Diagnosis, CCSVI, CCVBP, Dr. Damadian, Dr. Zamboni, Dr. Michael Flanagan, FONAR MRI, Matt Embry