While I agree with the CCSVI theory that problems with the veins draining the Central Nervous System are the true cause of MS, I don't favor medical intervention unless "manual" treatments to enhance blood circulation have failed. I'm going to revise once again the page MS: Cure or Control to emphasize this point.
Dr. Zamboni apparently treated his wife by opening her stenosed veins with balloon angioplasty. He is leery of using stents even though the jugular veins re-stenose 50% of the time (not great). After he publicized his "Liberation Therapy" study there followed numerous interventions, many Americans going overseas for treatment. Many patients received stents. In some instances the vein collapsed on either end of the stent. Eventually a stent migrated into the heart of a patient who died which caused an abrupt halt in the Stanford study, among others. (Never mind the numerous MS drug related deaths which haven't put a stop to medications with sometimes appalling side effects.) So now stents are feared by many patients.
However, balloon angioplasty has it's own problems. Wear and tear on the vein can cause it to close up or "occlude". It seems to me that a stenosed (or narrowed) vein is better than a vein that has been entirely blocked. (Again, I would try massage and circulation therapies before an intervention that might result in a worsened condition.) On the other hand, if one already has a blocked vein, these "manipulation" therapies won't work.
In short, we have the CAUSE of MS but not a sure fire CURE. I have found a way to CONTROL my MS. So has Dr. Wahls who, in addition to her diet modification, is inadvertently stimulating her blood circulation. (See blog post Dr. Wahls CCSVI treatment).
Dr. Salvatore Sclafani, an Interventional Radiologist who has pioneered CCSVI/MS treatment, runs a "thread" on ThisIsMS.com where the various CCSVI medical options are discussed. For instance, he gives his opinion on stents in his entry for February 25, 2012 on the thread "Re: Stent fears inhibit good care sometimes."
"I have described five indications for stenting:
1. injury to the vein during angioplasty, such as dissections that put the vein at risk of early occlusion and thrombosis or perforations that increase risk of hemorrhage.
2. multiple recurrent stenoses over a short period of time
3. stenoses that refuse to dilate by angiolasty alone
4. after recanalization of occlusions that occured previously
5. Compression syndromes that do not respond to angioplasty, such as May thurner syndrome and Nutcracker syndrome.
It is not unreasonable to delay stenting for some indications. But the most logical thing to do is have the discussion with your doctor. Assure yourself that he has plans for such sistuations and that you agree with them. Find out how many stents he has placed in the jugular vein, the azygous vein, the common iliac vein and the left renal
vein. More than 2-3% stent placement in IJV is too much Less than ten renal vein stentings is not great experience. "
I'll quote myself from the main paper MS Cure Enigmas.net
"MS cases are as varied as the veins involved, the areas of the brain or spinal cord drained by these veins, their structural condition and the general metabolism of the patient."
I obviously don't know anything about the medical option. But most Doctors know little about the "manual" circulation and diet option. We are both addressing the same problem from different perspectives.
Dr. Zamboni apparently treated his wife by opening her stenosed veins with balloon angioplasty. He is leery of using stents even though the jugular veins re-stenose 50% of the time (not great). After he publicized his "Liberation Therapy" study there followed numerous interventions, many Americans going overseas for treatment. Many patients received stents. In some instances the vein collapsed on either end of the stent. Eventually a stent migrated into the heart of a patient who died which caused an abrupt halt in the Stanford study, among others. (Never mind the numerous MS drug related deaths which haven't put a stop to medications with sometimes appalling side effects.) So now stents are feared by many patients.
However, balloon angioplasty has it's own problems. Wear and tear on the vein can cause it to close up or "occlude". It seems to me that a stenosed (or narrowed) vein is better than a vein that has been entirely blocked. (Again, I would try massage and circulation therapies before an intervention that might result in a worsened condition.) On the other hand, if one already has a blocked vein, these "manipulation" therapies won't work.
In short, we have the CAUSE of MS but not a sure fire CURE. I have found a way to CONTROL my MS. So has Dr. Wahls who, in addition to her diet modification, is inadvertently stimulating her blood circulation. (See blog post Dr. Wahls CCSVI treatment).
Dr. Salvatore Sclafani, an Interventional Radiologist who has pioneered CCSVI/MS treatment, runs a "thread" on ThisIsMS.com where the various CCSVI medical options are discussed. For instance, he gives his opinion on stents in his entry for February 25, 2012 on the thread "Re: Stent fears inhibit good care sometimes."
"I have described five indications for stenting:
1. injury to the vein during angioplasty, such as dissections that put the vein at risk of early occlusion and thrombosis or perforations that increase risk of hemorrhage.
2. multiple recurrent stenoses over a short period of time
3. stenoses that refuse to dilate by angiolasty alone
4. after recanalization of occlusions that occured previously
5. Compression syndromes that do not respond to angioplasty, such as May thurner syndrome and Nutcracker syndrome.
It is not unreasonable to delay stenting for some indications. But the most logical thing to do is have the discussion with your doctor. Assure yourself that he has plans for such sistuations and that you agree with them. Find out how many stents he has placed in the jugular vein, the azygous vein, the common iliac vein and the left renal
vein. More than 2-3% stent placement in IJV is too much Less than ten renal vein stentings is not great experience. "
I'll quote myself from the main paper MS Cure Enigmas.net
"MS cases are as varied as the veins involved, the areas of the brain or spinal cord drained by these veins, their structural condition and the general metabolism of the patient."
I obviously don't know anything about the medical option. But most Doctors know little about the "manual" circulation and diet option. We are both addressing the same problem from different perspectives.
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